Hello Everyone,

 I am writing on behalf on my sister who has Chemical Sensitivity and is looking to rent a room in a home or apt that is "safe" environmentally. Ideally this would be with another person who also has the same need.  Susan lives in Bradenton, Florida.  However, relocation is a possibility too.

 Please let me know of an opportunity or any resources for housing in this situation.  We appreciate any input that may be of help.

 

Thank you,

 Janet Alexander

Missy, my supposed girlfriend, unfortunately broke up with me last night, and as a VERY sensitive person I am completely heartbroken. Am I that ugly??? I feel like I am. I did nothing but try to help her and it was all for nothing. I feel like crying my eyes out, but because of the medicine I am on I can't. I don't know what to do!! I need to talk to someone about this so bad. Am I that damn ugly? I feel like I am. Because of this, I am going to delete most of the posts about her. Please contact me via windows messenger at paullbearer@hotmail.com, and thanks in advance!! I REALLY NEED TO GET OUT OF THIS GOD DAMNED NURSING HOME. (Please excuse my french). Any ideas? Please contact me!!

Hello All,

I sent the below to Mike and Di in response to their last blog entry. I am posting it here because it may also be helpful for others searching for information online.

(using dashes and/or the plus sign in searches)

Hello Mike and Di,

I read your Blog entry. You may also want to post this on the Forum. The Forum posts are read by a lot of people. However, not many have been replying. Linkable is not real active yet since the new design.

This may be helpful. When searching for information on Google, type in dashes "-" between the words. If you put a dash between the words, the search looks for an exact match. If you put a plus sign "+" between words, it looks for a match, but match does not have to be in the same order.

For example if you go to google and type in: "I-have-pseudomonas-aeruginosa" (without the quote symbols), you will find a few other people with the same condition.

I hope this helps, good luck.

Jeff

The most serious consequence of a mother drinking during pregnancy is fetal alcohol syndrome(FAS). Children with FAS have a distinctive set of facial anomalies, growth retardation, and significant learning and/or behavioral problems. Even children prenatally exposed to lower levels of alcohol may exhibit learning and behavioral problems. So far, a threshold below which no fetal damage will occur has not been established. In other words, any amount of alcohol during pregnancy can be dangerous.

 _____

jackspar.

Delaware Treatment Centers 

mike found out yesterday that he has pseudomonas aeruginosa in his bladder. the nurses dont sound like they know what they are talking about when i ask them questions. its frustrating for us, he takes one step forward just to get a blow like this. does anyone know more about this? we want to have a baby one day, if i get it could it affect the baby? if he is able to give me a baby rather than go to the sperm bank, could his sperm carry it and give it to the baby? does this mean condoms the rest of our lives? how big of a deal is him getting this. hospital policy says thats everyone going into his room has to wear a gown and gloves and mask. kinda scary having them say you have this big name bacteria, but we cant give you too much info, so we are going to dance around every question.

his accident happened on april 27th.  3 months ago yesterday. this is all new to us. he was originally paralized from his nipples down. now he has feeling all over. and has movement of his left leg, his right leg he can feel, but no movement yet. he is having bad muscle spasms. but thankfully, for the most part, mike is trying to keep a positive outlook on it. he says i have my life still, no matter how im gonna live it, weither it be in a wheel chair or not, im thankful for my second chance at life. he is a miracle, he wasnt suposed to survive, he died on the scene, and for the first week, the doctors were shocked he lived through it. he is an amazing man. he is my inspiration. 

anyone with anything to say, or tips, or anything at all, i would love to hear any input.  

Hello All,

We have added a new Link at Linkable.org to the Google Video RSS Feeds with the keyword "Disability".   The Link is on the top menu next to the Games Link.  Linkable.org is not responsible for the content of the Videos. 

Sincerely,

Jeff Redding 

 

Fibroterms in my support group gives us the giggles. To get us past some tough times, we are developing our own unique vocabulary... Maybe, just maybe, you will get a grin or giggle:

FIBROLOVE What we share with one another; a tender feeling for others that doesnt hurt

FIBROMYTE People who suffer with Fibromyalgia

FIBROFOG When the brain isn't engaged, but the heart is there!

Fibrotastic A good day, vs the horrible terrible Alexander kinds!

Fibrouged Fatigued to the maxed!

Fibrolous When someone in group uplifts you, it makes you feel "fibrolous"

Fibrolicious What someone is that makes you feel fibrolous... you are fibrolicious!

Fibromoto: When your stiffness is so bad and you get up ti walk a bit hunched over like Quasimoto (hunchback of Notre Dame)

FOL (fibrolaughing out loud)

??? hunched over granny sneezing her fanny off... so what would we call that? Fibrofannyno? Fibrosneezo? Fibromotouhoh? Fibrouhoh?

Fibroboogie woogie What we do when we find something that WORKS!!!

Fibrohugs What we want more of, just gently!

Fibrosnickers What we do when the doctor says, "It's a matter of exercise and positive thinking!" before we

Fibroslappo Batman-KaPow! Slam! Chunk! with a fist, a purse or any other object that might help them think again!

Other thoughts we've shared:

• "My head is like a bad neighborhood and I shouldn't go in there alone."
• "I'm not going to give anybody free rent in my head."
• "Being sick does not give me the excuse to act in a sick fashion."
• "There's no speeding in the trudging zone."

Fibromyalgia Winds of Change
Being Blown to and Fro, Where Do Our Lives Go?
By Shelley Echtle

Winds blowing remind me to bend a little, to hold my roots of values firm and my faith stronger. The winds of change I have endured as a fibromyalgia sufferer though, did not prepare me for the starting over that chronic illnesses forcefully demand. Like tornado forces, my clinging to superficials of today's world will only allow me to be swept up in painful retributions of spasms and headaches and so many other taunting struggles. And hurting is the last thing I want to induce.

I have learned that to accept and embrace my disease, rather than battling it constantly-- fighting the good fight as some doctors say, which only leads to further fatigue and depression; That embracing my curse helps me love the place it has brought me. Like loving the fact, I can not run 90 to nothing to shop for the bargains, or to double my school load each semester. Rather, I can shorten my days, and my schedule, and fall comfortably into my big fluffy pillow of rest and listen to music with more intent to relax my wearied carcass! By loving this place, I enjoy shopping now more for eclectic pieces of music to soothe my soul; I shop for devices meant to give me a helping hand, than demanding more energy, which is a higher price commodity in my world, than gasoline! I can choose what I need versus what society says I need. What I actually need is a lot less of many things, and more less-ness is what I really need.

Learning to love myself in the grip of this diseased storm, my roots cling to the faith I was raised upon, and proves it's truths to those around me. When others inquire "why" I keep singing and praying and smiling, in spite of the whinces of painful jabs and twists of pain, I can share my hope and faith. I love my shorter hair which allows me the time to carefully choose my clothing for the day. I don't have to spend hours in front of the mirror worried of other's scrutinizing stares. I love me, where I am, deeper roots than formerly pronounced. Maybe, my God, brought me to this place to learn how to smell the roses, count my blessings, and catch my breath. Maybe, this place isn't really a constellation of diseases and syndromes and drugs and doctor visits, but rather a milky way of rest, of personal reflections and choices for future goals that I might not have recognized otherwise. If so, then this billowing breeze turned hurricane has swept me to the yellow brick road and rainbow and beyond to a happier life by choice.

I can use this disease... just like it has used my body. I can reach out to others. I can choose to guard my time with family. I can do in a smaller way with more meaning, more love, more spirit. I can write and sing and show hope to others who might not see it elsewhere. Sometimes, the kindest words one hears, are the ones they speak themselves. I can be the kindness missing in this world. I can be the voice of the mute, the dance of the handicapped. I can be. I can lift my head to the winds and sing.

Hello All,

We have added many Health and Disability Related News Feeds to Linkable.org. Now you can stay current on a wide range of subjects. Our News Feeds update every hour.

I hope all visitors find this to be a useful resource.

Sincerely,

Jeff Redding